More than two years after its creation, health data startup Truveta on Tuesday launched a platform that provides access to information from more than 70 million patients. The tool, Truveta Studio, retrieves anonymized patient data from the startup’s 25 healthcare system partners.
“It’s a system that was designed to study any condition, any drug, any device,” CEO Terry Myerson told GeekWire.
Health data is demanded by medical providers, biopharmaceutical companies and academic researchers. Linking treatments to outcomes and underlying health can provide insight into the effectiveness of health interventions.
Other efforts to leverage claims or electronic health care data are often confined to individual health systems. The result is “really limited results that may not transfer to all communities,” said Truveta vice president of clinical informatics Michael Simonov.
Truveta Studio pulls from a massive dataset, representing approximately 16% of all US healthcare, from 43 states. The patient population is also ethnically, racially and socioeconomically diverse.
Similar to how Google queries information gathering across the internet, Truveta queries a broad landscape of health data, Myerson said. “We search the US medical records system and bring the results to you,” he said.
Truveta updates data from its partners daily, bringing together events from a patient’s entire medical history, including diagnoses, medications, procedures and devices.
Users can query for a specific condition, such as long COVID, and quickly extract related demographics such as patient age and gender. Users can also limit their dataset to people who have long COVID and another condition like chronic kidney disease.
Such real-time data would have been useful at the start of the pandemic, for example to assess outcomes in intubated patients at different stages of the disease, said Simonov, who is also a doctor. In April, Truveta published a preprint study linking certain pre-existing conditions to an increased risk of hospitalization for COVID-19.
A major computational challenge has been combining data from groups that use different processes, definitions and systems, Simonov said.
“We really needed to think about the web of concepts and how to store it in such a way that it was retrievable and usable by the user,” Simonov added.
Truveta aimed for consistency and transparency in how it defines conditions and stratifies patients, and allows researchers to skip these steps before extracting data. But the platform also allows users to shift these parameters within its library to adapt them to their own research.
“Truveta Studio offers a huge, comprehensive and up-to-date dataset. And the Truveta Library facilitates critical documentation and communication about how we define our cohorts,” said Ari Robicsek, Providence’s director of medical analytics and senior vice president of research, in a statement announcing the system.
Providence, the largest Washington state-based healthcare system, helped found the company and fostered a growing collection of startups.
The Truveta platform is available to health researchers within the company’s partner institutions, including Providence, and to external customers. Its clients include pharmaceutical giant Pfizer and medical device company Boston Scientific.